About Beni - my journey
Hi,
I’m Beni. A little boy who came into this world a bit differently than most. My journey hasn’t been easy, but it’s been filled with love. Now I want to share with you where I’ve come from, where I’m headed… and why I’m asking for your help now.
🤰 In My Mommy’s Tummy
During her pregnancy, my mommy took me to every required check-up, and everything always seemed perfectly fine. No one knew that I was special. The pregnancy went smoothly… until the 36-week ultrasound, when they discovered something was seriously wrong with me. That’s when the doctors decided to perform an emergency C-section.
My Arrival – Into the World and Into the Fight
When I was born, there was silence. I didn’t cry, and the doctors quickly took me away to keep me alive. From that moment on, it was hospitals, tests, therapies… and a new phrase I often heard: this little boy is severely injured.
It turned out that in my mommy’s womb, my body had started to swell with fluid, I had suffered from a lack of oxygen, and I experienced several severe brain hemorrhages. As a result, much of my brain was damaged. This is called cerebral palsy. There is no cure for it. They try to help me improve through physical therapy and conductive education.
Later, they also discovered that I also have Down syndrome.
Movement, holding my head up, focusing – I have to work very hard for everything. But I won’t give up.
My Days – Therapy, Love, and Little Miracles
I’m lucky because right after I was born, physiotherapist Uncle Sanyi came to see me at the hospital.
I started doing physical therapy at home when I was 4 weeks old. Back then, I had to do the Katona therapy six times a day. It was very tiring. My days were just therapy, eating, and sleeping, then therapy and eating again, and so on.
After half a year, we continued with other manual therapies. I still went to Uncle Sanyi and to Zsuzska for Dévény therapy, and to Edina for conductive education.
Later, I began HRG water therapy, FDM therapy, and I also go for craniosacral therapy.
Until I was two years old, I could attend developmental sessions at the hospital. Since then, I’ve been continuing my physiotherapy and Dévény therapy at the Bara House.
For me, even holding my head up or looking at someone I love is a big achievement. These may seem like small victories – but for us, they are huge steps.
🇲🇽 A New Hope: The Neurocytonix Therapy in Mexico
Recently, my mommy and daddy heard about a special opportunity: in Mexico, there’s a therapy that has already been successfully used with other children like me. This treatment – called the Neurocytonix therapy – could help my nervous system reconnect.
It’s not a miracle cure, but it’s a new chance. More focus, better movement… and maybe one day… a word. A hug. A step on my own.
Help me walk, play, speak… live
One treatment costs 17 million forints (around €44,000). Based on experience, I may need up to four treatments.
So now I’m asking you — if my story has touched your heart, if you’d like to help a little boy who fights every day for the chance to one day hug his mommy… please support me.
Even the price of a coffee – for me, it could be the path to the world.
Thank you for listening. Thank you for standing by my side.
Beni 💙